---
title: "Not sure if anyone here has a similar situation, but lately I’ve been reading a  — by DengYueMed  on Knowasiak"
description: "Not sure if anyone here has a similar situation, but lately I’ve been reading a lot of forum posts and patient stories online. Somehow it helps me feel a little less anxious. I was diagnosed with lun"
url: "https://www.knowasiak.com/thread/16458"
type: "post"
author: "DengYueMed "
author_url: "https://www.knowasiak.com/DengYueMed"
username: "DengYueMed"
published: "2026-03-09T02:37:18-07:00"
likes: 0
replies: 0
reposts: 0
views: 214
last_updated: "2026-03-09T02:37:18-07:00"
generator: "knowasiak-markdown-mirror/1.1"
---
# Post by DengYueMed  (@DengYueMed)

Not sure if anyone here has a similar situation, but lately I’ve been reading a lot of forum posts and patient stories online. Somehow it helps me feel a little less anxious.
I was diagnosed with lung cancer not long ago. At first I honestly never thought it could be something like this. I had a persistent cough and assumed it was just a lingering cold. When it didn’t get better, I went for a CT scan and the doctor found a shadow in my lung, so they recommended further tests. Those few weeks were really stressful — doing tests, waiting for results, and constantly worrying.
Eventually I had a biopsy and it confirmed non-small cell lung cancer. My doctor suggested doing genetic testing because nowadays treatment options can depend a lot on the mutation profile.
When the report came back, it showed that I have MET exon 14 skipping. To be honest, I had never heard of it before. I went home and spent quite a while reading about it, looking through patient forums and some information sites, including platforms like [DengYueMed](https://dengyuemed.com/) that compile information about cancer medications, just trying to understand what it all meant.
My doctor explained it in a simple way — there are targeted drugs that may work specifically for this mutation.
So now I’m taking an oral targeted medication called Capmatinib. I take it twice a day, and the fact that it’s a pill rather than something that requires frequent hospital infusions has helped reduce some of the stress for me.
When I first started taking it, I was pretty nervous about possible side effects. After being on it for a while, the main thing I’ve noticed is swelling in my feet, especially around the ankles. Sometimes my shoes even feel a bit tighter than usual. I also have days where I feel more tired than normal, but overall I’m still able to live fairly normally.
A few days ago I had a follow-up scan, and the doctor said the disease currently looks stable and hasn’t grown, which was honestly a big relief to hear.
Still, the whole process comes with a lot of uncertainty. I find myself reading many patient stories online. Some people seem to respond really well to treatment, while others have more mixed experiences, so naturally I still worry about what the future might look like.
What I’m really curious about is whether anyone here also has MET mutations.
If you’re taking a similar targeted therapy, what kinds of side effects have you experienced?
And one thing I’m especially wondering about:
Is ankle swelling common with this kind of medication? Has anyone found something that helps reduce it?
Reading other people’s experiences sometimes makes me feel less alone.
If anyone is willing to share their experience, I would really appreciate it.

## Metadata

- **Author**: DengYueMed  (@DengYueMed)
- **Published**: 2026-03-09T02:37:18-07:00
- **Likes**: 0
- **Replies**: 0
- **Reposts**: 0
- **Views**: 214
- **Canonical URL**: https://www.knowasiak.com/thread/16458

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